Hi! Welcome to my blog!

This is my first attempt at blogging.
Today I am off from work with my husband napping...
I just feel it is important to share our journey!

Saturday, February 12, 2011

Waiting, Waiting, Waiting!!

Last week was so very long...
Jim was in the hospital Friday, Feb. 4th-Feb 9th due to leg weakness and disorientation..
He is walking much better now and even though he does not see "little people", he is losing vision in his right eye now and needs help to identify objects and help to walk around the house with his new walker...

We have been referred to a specialist in St. Louis for possible research medication...

On Thursday he received his Zometa but not the chemotherapy agent, Alimta. (Tarceva continues)

We have asked to be admitted to Barnes if and when he needs more tests or surgery, and are hopeful that our insurance will pay for this....

While a patient at Memorial Medical Center in Springfield, he received physical therapy and occupational therapy to help him adjust to his imbalance and loss of vision.  Last night he fell in the study and now has pain along his left chest wall... (he wants me to wrap the heating pad around him and hold it in place with ace wrap!.. not going to happen)
When I told him I wouldn't use the ace wrap around his chest he said, "I'll just ask Denny to do it!"

Now diagnosed with an enlarging spinal tumor, he is taking Decadron to reduce swelling and pressure.
It appears that the Decadron has helped him regain leg strength and balance enough to navigate through our little house with the wheeled walker and sometimes with my help.

Waiting to go to St. Louis is difficult...
I want to go to work...
Jim wants to be "left alone" at the house
& the dog wants his peaceful home back!!!!!!  (just kidding)

What wonderful support we have received from MMC where I work...

Jim is not looking forward to going to Barnes even for a short stay.. he told me and the nurses, "Now I know everyone, and I feel better at Memorial!

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